Eyes

Elianna had an eye appointment today. It was very helpful and at the same time not particularly informative.
Her eyes look normal and there actually isn't cataracts (I don't know where that information got misconstrued but it did). She appears to have normal eyes although the nerve in her right eye is a bit small, which may or may not effect her vision. Basically this is a wait and see situation. Nothing new there and no pun intended. Haha.

Unless we have concerns we don't need to see this doctor again. Nice in terms of appointments but too bad because he was fantastic and not every one we've met is someone I'd care to see again.

Today has been a sad day though. All over again the brutalness of the situation is staring me down. I am caring for a baby that is dying, is still as helpless as the day she was born (no smiles or giggles or attempts to roll over or grab a toy) even though she's now been here for 3 months. We are finding our groove which is good but at some unknown point in the relatively near future it will change again. Not just change like things do when babies reach new milestones but like a huge crevasse opening in the ground beneath us. I am scared that crevasse might swallow us up entirely. I sometimes don't even know what to say in conversations that involve the future.

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