
We've had a good week. She has a cold which has made things tough for a few days. She wasn't digesting her food. She did have a couple of rough days with breathing episodes but today was better again.


We are trying to get into a life of a new normal.
We have two kids and run a business out of our home. It's a lot in the best of circumstances.
We know you are all concerned and your questions come from a place of love but, answering the "how she's doing?" question is exhausting. We are trying to just live in a sort of normal assuming that she will be around. It is so hard to know if this rough day means anything or not, when we know there's been a serious or significant change we will let people know.





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