I ran out of steam last night. There is some peripheral things we do know about Elianna's health. She has cysts on her kidneys (consistent with Zellwegers), currently they are not effecting function and she seems to be producing adequate urine. The doctors also checked her eyes and found she has cataracts (again, consistent with Zellwegers) and they want to do further testing to determine function of her eye nerves. They also plan to test her hearing at some point. To us she seems to hear and is quite responsive to various sounds.
She is also gaining weight appropriately which is encouraging.

It's been a bit of a discouraging day on the home front, we discovered some kind of plumbing leak in our downstairs kitchen, there's a lot of water there.
What a sweet face! Lots of love to the littlest Schultz, and love and hugs especially to the brave parents. Praying for strength and courage and joy for you all. Love, Aunt Erika
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